One of the most common questions women with vasculitis ask is how this disease will affect their ability to have children. Unfortunately, there is very limited reliable information regarding pregnancy and women with vasculitis. This is a great concern for both patients and physicians.
The outcome of pregnancies in women with vasculitis is unknown and the reproductive health of women with vasculitis has not been studied extensively, until now!
The V-PPRN is pleased to be working with Megan E. B. Clowse, MD, MPH from Duke University Medical Center to launch the Vasculitis Pregnancy Registry (V-PREG). This registry will be collecting information to help find answers to how vasculitis impacts reproductive health and pregnancy outcomes.
The purpose of this study is to learn about the experience of women with vasculitis who become pregnant. In particular, the study will consist of several online surveys to assess a) each woman's vasculitis severity and pregnancy-related experiences, and b) pregnancy outcomes.
You can participate if you are a woman, 18 years of age or older, currently pregnant, and have a diagnosis of vasculitis.
To join, you must be a part of the V-PPRN. Click on the V-PREG study link from your V-PPRN patient portal.