Vasculitis Patient-Powered Research Network
A partnership of the Vasculitis Clinical Research Consortium and the Vasculitis Foundation

VascWork Study

Work disability associated with rheumatic diseases accounts for an important part of the costs of these conditions, in addition to direct treatment costs, especially with biological agents. Interest has been growing in studying work disability associated with rheumatoid arthritis, but only a few studies have investigated vasculitis.

The purpose of this study is to learn about the impact of vasculitis on employment and income in patients with different systemic vasculitides.

This study is being conducted by the Vasculitis Patient-Powered Research Network and the Vasculitis Clinical Research Consortium and led by Dr. Christian Pagnoux, from Mount Sinai Hospital, in Toronto, Canada. He is collaborating with Dr. Lillian Barra of the University of Western Ontario, in London, Canada along with colleagues at the University of South Florida.

Study overview

The purpose of this study is to learn about the impact of vasculitis on employment and income in patients with different types of vasculitis.

Hear more from the doctor leading this study:

Hear from patients who have participated:

Thank you for participating!

426 PATIENTS PARTICIPATED!

Thank you to all those who participated in this study and made this research possible!

 

What's involved?

Below is a description of how to join the VascWork study for V-PPRN members and for people who have not yet joined the Network.  

New to the Network

If you are not already a member of the V-PPRN, you will need to join the network. Once you have joined, you will receive an email asking you to participate.  Before you can take the survey, you will be asked to fill out a few short forms relating to your vasculitis. Once you have completed those forms, you will then receive a second email with a link to the VascWork Study.

Already a V-PPRN Member

If you are already a member of the V-PPRN you will receive an email inviting you to participate in the VascWork study.  This email will contain a personalized link for you to participate in the study. Once you access the link, you will be instructed on how to complete the survey.

For the VascWork Study

Once you have received your email with your personalized link you will be asked to:

  • Agree to participate by signing the informed consent form online.
  • Fill out multiple choice questionnaires about your work history and if vasculitis has impacted your ability to work.

Join the V-PPRN and become a vasculitis visionary! Get Started