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Welcome to the
Vasculitis Patient-Powered Research Network (VPPRN)!
A Partnership of the Vasculitis Clinical Research Consortium (VCRC) and the Vasculitis Foundation (VF)
The VPPRN, including the Pediatric Registry of the VPPRN (PedsVPPRN), is an online, global patient-centered registry working towards a common goal: to improve the quality of life for all patients across all types of vasculitis and ages.
As the research arm of the Vasculitis Foundation, the VPPRN conducts patient-centered clinical research – in other words, we strive to find answers to the questions most important to patients living with vasculitis.
Let's begin! To start, tell us who you are.
Questions?
Contact
the VPPRN Network Manager
Christine Yeung, VPPRN Network Manager
The VPPRN is supported by the Vasculitis Clinical Research Consortium (VCRC), the Vasculitis Foundation, the Penn Vasculitis Center, and Biopharmaceutical Industry Partners.
Why you should join the research network
5,000+
Members in the VPPRN
100+
Countries represented in the VPPRN
Why research matters
Vasculitis is a rare disease that can affect anyone, at any age. Because doctors are still learning what causes it, there’s a lot we don’t know. Research helps us understand the disease better, find more effective treatments, and improve the quality of life for people living with vasculitis.
Your experience drives research
By joining the VPPRN/PedsVPPRN, you can help us learn more about vasculitis. Your experiences and insights are what make research possible. You know your disease best, and sharing your story can help doctors improve understanding, treatment, and care for everyone living with vasculitis.
Together we make a difference.
Want to learn more? Click the links below for additional information:
